Wednesday, September 30, 2009

more pics

i couldn't fit all of my pics in my last post, so here are some more (:
i love this picture - lyla found labor very exhausting! ha ha
lyla meeting her new baby sister for the first time!
we stayed up all night Saturday with Evie, loving her, crying with her, praying for her, not knowing yet that her diagnosis had changed.
Tuesday afternoon - the girls getting ready to go home!
home at last!

One day at a time (:

Okay all you picture crazy people! I'm finally getting caught up on sleep (well kind of) and getting my priorities straight... like posting pictures of Evie and Lyla for your viewing pleasure (:

We are doing so good. I can't believe we are all home together, and going through the normal newborn routines of getting up in the middle of the night, taking naps, etc. It is such a welcome blessing. Both girls are doing good.

Evie still has a "skeletal dysplasia" but not a life threatening one, Praise God. We are seeing a pediatric orthopedist next Wednesday to take a look at Evie's bones and see what they think. We are hoping they can fix her clubfeet, and have some sort of idea how they think she will grow, and if there is any way we can be helpful in the meantime.

Other than that we are waiting for the geneticist to hear back from the Skeletal Dysplasia Registry about her x-rays, pictures, etc. to see if they have come up with a diagnosis. This is the same group of people who diagnosed her with OI, Type 2 from her ultrasounds. I pray that they can see God's healing hand when they compare ultrasound to x-ray! It makes me excited just to think about it (:

Many people have asked how they can pray, my biggest request is that the doctors can accurately diagnose her, or at least correctly diagnose any problems and if there is anything we can do.

Secondly, prayer that I can take one day at a time, Praise God for her life and all that he's already given us, and not worry about her future.

Okay, here are more pictures from the hospital and a couple from home. Bosley Creative did the hospital ones (why they are so amazing!) and we had newborn pictures done last night, so those should be coming soon!

Love you friends, thanks for praying (:
Lindsey, John, Lyla, AND Evie!

Lyla helping the nurse wash Evie's hair

Evie and mom (:

the fam

Evie Jayne with daddy

Thursday, September 24, 2009

We're Home!

Hi Friends and Fam,

Quick update, sorry it has taken me so long, once the girls are asleep I am so tired! We are doing great. We came home from the hospital on Tuesday, and are adjusting to our "new normal" pretty well! Evie sleeps and eats like a champ and Lyla is getting more and more comfortable sharing her mom and dad. I wanted to share this "Love Is" cartoon that was in the paper on Saturday, one more glimpse of God's goodness to us and his will for Evie's life.

Love you, and I promise I will post more pictures soon!!!

Lindsey, John, Lyla, Evie (:

Monday, September 21, 2009

Evie is 2 days old!!!!

Hi Friends and Family!

Well... miracles happen!!! (: Evie is living up to the meaning of her name..... "life." We had a long weekend, delivering Saturday at 6:37 (after only 3 pushes! answered prayer!). She was loved, prayed over, and passed around to meet family and friends. Sunday morning she had a rough night, labored breathing for a few hours, and we still thought she had the initial diagnosis of lethal OI. We would look at each other with tears in our eyes every few hours and say, "wow, we've had 2 hours." "wow, it's been 4 hours" and now that it's been over 48 hours I feel showered in God's grace and loving kindness with a whole list of answered prayers, thank you friends!!!

Long story short... after a good day Sunday, x-rays, genetic counseling, seeing our pediatrician, perinatologist, and a head ultrasound, Evie no longer has a life threatening diagnosis at all. She still has a skeletal dysplasia (disorder), we aren't sure which one, and what her specific prognosis and treatment will be, but she is doing amazingly well. The important things are all in place, a normal sized rib cage, healthy developed lungs, a strong heart, normal brain ultrasound, etc. Praise God. She has started bottle feeding, and is doing great.

I can't thank you enough for your diligent praying for Evie. I can't wait to take her around town and show her off. Praise God, the Great Physician for delivering her through the valley that we were in just a few days ago. There is no doubt in my mind that whether she initially had OI or not, God healed her body, and he's not finished using her in miraculous ways. Her life is a testament to the power of God and his love for his people.

We just got to tell Lyla today for the first time that baby Evie was going to come home and live at our house, it was one of the best moments of my life. Lyla gave us the okay, and even helped change a few diapers. I am happy to report that she knows poop is "brown"... we have really been struggling with our colors and it put a smile on my face.

I could go on for hours, and I'm sure I'll get all the details out eventually, but for now let's PRAISE GOD for answered prayers, healthy kids, lives changed, and the power that comes from Him alone.

Lindsey, John, Lyla, AND Evie !!!

Sunday, September 20, 2009

Welcome Evie!

Evie was born Sept 19, at 6:37pm.
She is 6lb 11oz, 16.5 inches long.
So far, so good! Praise God!
She is absolutely beautiful (:

Thanks for lifting us up in prayer, Keep it up! Pictures to come, if I ever put her down (:

Love you,
Linds, John, Ly, & Evie

Thursday, September 17, 2009

Friday... going in.

Hi Friends and Fam,

In less than 24 hours we will be at the hospital... getting prepped for Saturday morning. After my doctor's appointment this morning I have felt more peace than I have in a long time. My doctor is Amazing (yes, with a capital A) and respects and supports us, Methodist hospital has made accomodations that put me SO at ease, and I can literally FEEL the blessings being poured down on us as a result of prayers and the community of believers who believe without a doubt that we will be carried through, and that God CAN heal Evie if that is His path for her life. I was reminded today that he knows the number of her days, and (as Lyla would say) it "makes my heart so happy." Knowing that we will get to see her face and hold her in our arms helps ease some of the pain of possibly losing her.
I am going to take a few verses with us to hang in our delivery room, I thought I would share them with you to hopefully encourage you also. What a blessing to know that God will be with us there.

Isaiah 40:28-31
28 Have you never heard?
Have you never understood?
The Lord is the everlasting God,
the Creator of all the earth.
He never grows weak or weary.
No one can measure the depths of his understanding.
29 He gives power to the weak
and strength to the powerless.
30 Even youths will become weak and tired,
and young men will fall in exhaustion.
31 But those who trust in the Lord will find new strength.
They will soar high on wings like eagles.
They will run and not grow weary.
They will walk and not faint.

Joshua 1:9
9 This is my command—
be strong and courageous!
Do not be afraid or discouraged.
For the Lord your God is with you
wherever you go.

Lamentations 3:22 - 23.
Because of the Lord's great love
we are not consumed, for His compassions never fail.
They are new every morning;
great is Your faithfulness.

Revelation 3:20
Here I am!
I stand at the door and knock.
If anyone hears My voice
and opens the door,
I will come in and eat with him,
and he with Me.
Love you,
Lindsey, John, Lyla, and Evie

Thursday, September 10, 2009

Evie Update and Induction Date

Hi Friends and Fam,

Thanks for your prayers these past few months, I can't believe how fast they have gone.

We had another appointment this morning, it went fine. Evie is doing the same, my fluid level is actually better. They had a hard time getting good pictures of her face, things are getting pretty cozy in there (: Unbelievably, we will get to see her face in person very soon, I am scheduled to be induced Saturday September 19th. Depending on how my body is progressing I may go in the Friday night before so they can get me more ready for labor, stay the night, and be induced in the morning.

How are we doing? Our daily routine is nice, but I have a tough time when I sit down and take some time to process everything. I can't wait to meet Evie and tell her how much I love her and I can't wait for her to meet her dad and sister. The thought of her not surviving is really difficult for me to deal with. I understand all of the information and statistics that we have been given, but I'm not giving up any hope that she will live. We have made preparations either way.

As far as prayer requests go, my biggest fear is that she won't survive delivery. Along with the other prayer requests I have put out there, that is my biggest request. Getting to meet her and spend time with her is so important to both of us.

Thanks again, and if you don't hear from me again before the 19th my dad will be sending out updates (:

Love you!
Lindsey, John, Lyla, Evie.

"Because of the Lord's great love we are not consumed, for His compassions never fail. They are new every morning; great is Your faithfulness."
Lamentations 3:22 - 23.