tag:blogger.com,1999:blog-1170051061429061877.post221736699549621075..comments2023-09-09T06:24:49.182-05:00Comments on evie jayne: TomorrowLindseyhttp://www.blogger.com/profile/09069065763368651303noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-1170051061429061877.post-43187413320185032962010-01-16T00:16:24.074-06:002010-01-16T00:16:24.074-06:00Hello Anonymous (:
Thanks for the post - Dr. Lutz ...Hello Anonymous (:<br />Thanks for the post - Dr. Lutz our geneticist is in contact frequently with Dr. Whyte, and had him confirm Evie's diagnosis. I have read a lot of his literature... and he is definitely the expert!<br /><br />Thank you for your prayers for Evie, I will pray your son also (:<br />LindseyLindseyhttps://www.blogger.com/profile/09069065763368651303noreply@blogger.comtag:blogger.com,1999:blog-1170051061429061877.post-14882006122870390922010-01-15T22:48:47.339-06:002010-01-15T22:48:47.339-06:00My little boy (9 mo.) has a mild form of hypophosp...My little boy (9 mo.) has a mild form of hypophosphatasia. Are your doctors in touch with Dr. Whyte at Shriner's Hospital in St. Louis? He is the world expert on this rare disease. Many thoughts and prayers to your little girl and your family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1170051061429061877.post-3544829213129235362010-01-13T17:57:45.830-06:002010-01-13T17:57:45.830-06:00Will be praying for you all! Who are you taking h...Will be praying for you all! Who are you taking her to see? Did your story ever air on KETV? Tried finding it with no luck!!! Good luck tomorrow!Stacihttps://www.blogger.com/profile/11072196865353305350noreply@blogger.comtag:blogger.com,1999:blog-1170051061429061877.post-14822430603528062132010-01-12T23:30:27.916-06:002010-01-12T23:30:27.916-06:00Just caught up again here! Praying for you always!...Just caught up again here! Praying for you always!!! I hope everything goes well at the doctors!!! Yay for the port coming out and the weight gain! Go Evie!!! Lyla had me cracking up with her "Oh crap" Too funny! Best of luck, prayers for you and many hugs!!!Melissa Swartleyhttps://www.blogger.com/profile/11688196881304259275noreply@blogger.com