FREEDOM!

Sorry it's been so long since i've posted... I've been chasing Evie around!! She got a new walker a few weeks ago that we take EVERYWHERE... and today her PT brought her some new canes! We are still getting the hang of them (:

She has managed to stay well the past few weeks and is just doing totally awesome.

Love you friends, thanks for checking in!!

HPP (and Evie!) hit the news

Hey Friends!

This week is a big week for Evie's drug treatment... the results were published in the New England Journal of Medicine today. It is so wonderful how well the kids are doing who are receiving the medicine. As a result I did a few interviews that have been published on line. I will link them here for you to read in addition to a few other articles about the treatment!

http://www.reuters.com/article/2012/03/07/us-alexion-hypophosphatasia-idUSTRE82621F20120307

http://www.myhealthnewsdaily.com/2322-rare-bone-disorder-drug-hypophosphatasia.html

http://www.foxnews.com/health/2012/03/08/kids-with-rare-deadly-bone-disorder-gain-hope-from-new-therapy/

http://news.yahoo.com/experimental-drug-offers-hope-rare-bone-disease-study-220208113.html;_ylt=AuUBt_PtaySS3dwyz5kCaNePscB_;_ylu=X3oDMTNna3NwYWJtBG1pdAMEcGtnA2VjODMyMTQ1LTdhYmYtMzg3Yi1iYjZmLTI5ZGQ0NDYzZjQzNwRwb3MDOARzZWMDbG5fRGlzZWFzZXNfZ2FsBHZlcgMwOGFhOGUyYy02OGRhLTExZTEtYmZiZS03MDA5ZTNmMGE0MDc-;_ylv=3

http://www.livescience.com/18916-rare-bone-disorder-drug-hypophosphatasia.html

http://www.doctorslounge.com/index.php/news/pb/27339

Thanks for your prayers over the past 3 years, it has been wonderful to watch God work in Evie's life. I am in awe of his goodness.

Lindsey