Tuesday, December 11, 2012
Well Evie has reached her next milestone... She gets to go to the "playroom" with the other kids at Sunday School and can play in the "big kid side" of the gym child center. She can finally walk fast and steady enough that we feel like she can play safely with bigger kids (:
I am going to go to the Sunday school playroom with her for a while, to make sure she doesn't get trampled. The past two weeks Evie has played with a little girl named Hope. When John and I were first considering adoption/foster parenting Hope's parents came over to tell us about their journey with international adoption. That week they had gotten Hope's picture from the agency. They had finally been matched with their daughter. Unfortunately they waited over a year to bring her home after complications, it was a heart wrenching roller coaster of a waiting game. There were times they didn't know if Hope would ever come home.
Hope has been showered in prayer just as Evie has been the past 3+ years. It was so fun to see these two little girls, with their big sparkley eyes running around at our home church. God conquered mountains with his LOVE, goodness and promises to carry them through. I wish I could see how many prayers God has heard for both of them, and how many lives He has touched watching them grow! It is such a blessing to see Hope's family grow in their love for Jesus and kids all over the world through their adoption process.
This hit me during a week when I was questioning where God will take our fostering process, especially as I fall more in love with the little girl we have in our home. It was encouraging to see Hope and Evie and remember that God has a good plan, he never changes, and he knows what the next year, 5 years, and 50 years hold for us. Whether that means our foster daughter will stay here with us, or if he has other plans for her. He is good. I will think about Hope and Evie running around smiling when I get discouraged (:
I hope you are all having a blessed, God-filled holiday season! I will be back soon with holiday pics (:
Love you all, thanks for checking in on us (:
Thursday, November 8, 2012
Wednesday, October 17, 2012
After Evie's story was published in Spirit magazine, I got an email from a pediatrician in the pharmaceutical industry talking about Evie's story and asking if I had done any advocacy for her. At the time we were still recooperating from two years of hospital stays and doctors visits and I wasn't really sure where I would even start; then this past spring he asked if I would be willing to speak at the American Acaedemy of Pediatrics conference for his section, Advances in Therapeutics and Technology. Well, YEAH!!! Sign me up!
SO we are headed to New Orleans tomorrow, and Evie's geneticist and I are presenting "The Importance of Clinical Trials from a Parent's Perspective" on Monday!!!!! I couldn't be more excited to share Evie's story with pediatricians, researchers, people in the pharmaceutical industry, the FDA, etc. What an enormous honor for us to be included, and I am prayerful that Evie's story will encourage pediatricians and pharmaceutical companies to work together for the health of other kids. The research that has gone into Evie's medicine and treatment brings me to tears as it has sustained her life. I hope that I can show a glimmer of the gratitude that I feel in my heart as we have been given the gift of life by researchers who may never meet Evie, or other kids on the trial, in person.
Prayers are hugely appreciated as we travel with Lyla and Evie to New Orleans, make our way around a new place and enjoy some beautiful weather!! If my weather channel app is correct we are looking at 82 degrees and sunshine all weekend (: Sounds like a little piece of Heaven!
God is so good. My biggest prayer is that God's love and unchanging awesomeness will shine through our family as we share our experience, meet new people, and reflect on the past three years. That God will bless us, so that we can be a blessing to others.
Love you friends!! Can't wait to tell you how things went.
Thursday, October 4, 2012
Friday, September 28, 2012
How do you put into words three years of God's ourpouring of love and hope! We are thriled to have shared the past three years with both of our girls, and watch them grow into amazing kids!!
Evie has had an EXCITING birthday month. Excitement here in the Elsaesser home can be good and bad. We'll start with the good. Evie had an amazing birthday week, filled with family lunch, the zoo, and a birthday party at the nail salon with a girlfriend from school (: Her walking is getting amazing!! Here is a video from the zoo:
Unfortunately Friday night after her birthday party she fell in our basement and was in a lot of pain. We went to the ER and they thought she may have just bruised it but we saw her Orthopedic Surgeon on Monday who confirmed that she has a fracture. He sent us over to the orthotics company that makes her AFO braces and they made her a fancy HKAFO (hip knee ankle foot orthotic) so she can still move around and keep exercising her leg. After a pretty miserable weekend it was great to have a solution that would help her get around. She was back to school Thursday and back to music class today.
So we have a new brace for the next three weeks before her next x-ray. Hopefully things will heal well and the brace will keep the fracture from getting worse. We feel super blessed to live in a city with so many pediatric specialists (:
I can't get my photos to upload, so Big Girl Birthday Photos will be coming soon.
Here's to many more years with our sweet Evie!!
Love you friends (:
Tuesday, September 11, 2012
Hi Friends (:
After about a month of working on her skills...
EVIE IS WALKING!!!
There is nothing better for me right now than watching Evie take new strides! When Evie's physical therapist was wrapping up a few days before school started she took her first few independent steps, now she is walking independently across the room. She still crawls at times but is more consistently standing up to walk. It's slow and steady and she still uses her walker for long distances (and when she wants to go FAST - as she puts it).
I can't express in words how it feels for me to see Evie walk. Waiting for her to walk these past few years has humbled me and broken my heart (in a good way). It has caused me to stop hoping for the next thing and be content in the present.
I AM SO PROUD of our sweet girl and her determination. When our computer decides to cooperate I will post pictures of her FIRST day of swimming lessons yesterday.
and a big THANK YOU to Suzie from the park... who couldn't wait to meet Evie as she has been following our blog since the beginning. It was a good reminder for me that I need to get on here more often and share our JOY in the craziness of life!
and... we have another new family member! Our first foster placement went home after two months, and four days later we took our second placement. We are back to same-sex children and enjoying a bit of a slower pace (i have a new appreciation for mothers of boys!!!)
LOVE YOU FRIENDS! (:
Evie's life verse (capitals added by myself):
But those who trust in the Lord will find new strength.
They will soar high on wings like eagles.
They will run and not grow weary.
THEY WILL WALK and not faint.
Friday, August 17, 2012
It's official, we have joined the scores of people waking up early and driving their kids to Elementary School! No more sleeping in until afternoon preschool. I'll be honest, I think I am more tired than the kids!
Lyla started Kindergarten this past Tuesday. I had a few weeks of intense prayer over her teacher and classmates and she is off to a good start. I am praising God that she likes it so much! She was very apprehensive about it this summer which made for a very apprehensive Mama, but she (and I) have survived our first week.
Evie on the other hand can't wait for me to get her walker out of the car so she can run inside and play with her friends. She started school on Tuesday morning with the intention of her going two days a week, Tuesday and Thursday. I took Lyla to school on Wednesday morning and while pulling back into the driveway heard a little voice from the back seat "No mommy! Evie's school! Go Evie's school!!" It was an intense negotiation but I got her inside the house. Many tears were shed. A few minutes later she was sitting on the living room floor, put her backpack back on and said nicely, "Evie's school please mommy? Please?" followed by big round hopeful eyes. It was her last ditch effort to see if I would take her to school if she asked nicely (: Needless to say we are going to try three days next week (: She uses her walker the whole time and can finally take some independent steps. I am really proud of her.
Lastly, and least importantly... mom. I did so good the first day, no tears, it was really fun to see the girls start a new chapter. It wasn't until last night that I finally had to cry out the fact that I just really miss Lyla during the day when she's gone. The three hours that Evie goes to school are do-able, but the 8 to 3 thing is really hard for me.
I'm praising God for the giant leaps both girls made this, and praying for restful weekend days, or "family days" as Lyla calls them (:
Love you friends!
Wednesday, July 18, 2012
Evie had a big day today!! During her PT session she put on some of Lyla's old Christmas shoes that squeaked... this must have been what she needed as motivation to walk with just one cane! Later we found some similar shoes in her size and shot some more video (: Here she is!!
Thanks for checking in!
Love you guys, Lindsey
Wednesday, June 6, 2012
Love you friends!
Sunday, June 3, 2012
I sincerely apologize for taking so long to update my blog, about a week ago people started asking me to update... now they are just plain telling me I have to. I agree, it's been way too long.
So where were we... During my last post I was talking about the big decisions we have for fall. Those decisions have been made and we are pretty excited about it. Evie is starting "transition group" for kids entering preschool in the fall!!! PRESCHOOL!? Yes. We decided to send her 2 days a week instead of the usual 4 to get her introduced to preschool, get her some extra time with a speech therapist and social time with other kids. Evie may be the only two year old who doesn't need help socializing, we were out to eat the other day and a little girl shouted "Hey mom! That's my friend Evie from the gym!" It was pretty darn cute.
Lyla will be going to full day Kindergarten in the fall. We have been having a really hard time deciding, but I think we have decided she's ready. Lyla loves structure, activity, routine, and playtime so we are praying that full day kindergarten is the right fit. She has a pretty soft heart so hopefully we can tackle the "hurt feelings" as they come. Lyla turned 5 on May 19th. I think her 5th birthday has been the first that was a little hard for me. It's hard for me to imagine that we have a "school aged" child. She has promised that she will still hug me when she's 13 and wants to live at my house forever, so I'm just going to have to hold her to it (:
Lyla's 5th birthday questionnaire:
What do you want to be when you grow up?: nothing. ("what do you mean nothing?") nothing, like you mom. (ha!)
What is you favorite thing to do?: play, color, and play games.
What's your favorite color?: pink
What's your favorite thing to eat?: breakfast and golden grahams.
What's you favorite TV show?: PBSkids.org
What's the best thing in the world?: movies and My Little Pony
Best present?: Twilight Sparkle (pony)
If you could be an animal what would you be?: a flying squirrel
And to address my blog title, I'm most certainly NOT pregnant for those of you who were wondering! We took our first foster placement two and a half weeks ago, and so far it has been great. The first week was a tiring transition but I think we're definitely getting the hang of things. For the sake of confidentiality let's just say we have a new little person, between the ages of our girls, who prefers trains to barbies. It's been an adventure! I wish I could write more about what's been going on, God has shown up around every corner and it's been amazing to watch Him grow in our family.
My next mission is posting photos! Our computer is on the verge of death and sounds like an airplane taking off every time we turn it on, so hopefully we will be upgrading and blogging will be easier and more frequent. Thank you for being patient with me, Three kids is a lot more than two!!
Love you friends, promise to be back soon.
Sunday, April 15, 2012
Wednesday, March 28, 2012
Thursday, March 8, 2012
Wednesday, February 29, 2012
It was so fun to look at all of the pictures on facebook of people Evie's age and older, to see how she might progress as she grows. We are blessed to have an active community with so much loving support (:
Monday, February 27, 2012
That being said, we decided she could go back to sleeping in her own room last night. We all thought that was a great idea except Eve of course ): so we let her cry it out for a while and after a few reassurances and drinks of water she finally fell asleep.
I woke up this morning to the sound of the girls chatting about what to do today (: Evie had woke up, got herself out of bed, crawled to Lylas room and woke her up! Lyla got herself dressed and put Evies shoes on over her braces, it was just the sweetest thing.
She is already asleep in her bed tonight, I am praying it goes as well as last. Thanks for your prayers and words of encouragement they mean the world to us when we are exhausted and down.
Love you friends (:
Thursday, February 23, 2012
Saturday, February 11, 2012
Thursday, February 2, 2012
Wednesday, February 1, 2012
Like I said last week, Eve has never had more than one of these apnea/seizure episodes in a day, having 6 in one day last Monday was terrifying. I felt myself constantly thinking "is her condition getting worse?", "are these episodes worse than usual?", "are we doing the right things?", "is this the beginning of the end?" We are content in knowing that God knows the number of our days, but that doesn't mean we are ready for that.
All in all, things seem to be normalizing in her little body, just not in her mother's heart. I am being overprotective. I ask her if she's okay every 5 minutes, watch her breathe constantly and tell her I love her 100 times a day. I know God is in control and I need to loosen my grip, but wow is that hard to do when pictures of her struggling to breathe are racing through my mind.
Thank you again for your prayers. We will have pulmonology and neurology follow-ups this month, I will let you know how those go.
Praying for Gods many blessings to each and every one of you (:
9 This is my command—be strong and courageous! Do not be afraid or discouraged. For the LORD your God is with you wherever you go.”
Sunday, January 29, 2012
Wednesday, January 25, 2012
Tuesday, January 24, 2012
Monday, January 23, 2012
Evie had three seizure/no breathing episodes this morning, another in the ER and another this afternoon. She has never had more than one in a day. They have upped her seizure meds and we are staying overnight to keep an eye on her.
Say a prayer for her (: thanks friends.
Sunday, January 22, 2012
Thursday, January 5, 2012
Monday, January 2, 2012
We had the most wonderful Christmas Eve and Christmas day with family and friends in town. We got to spend time on both days having family over to our house, it was so fun to have a new place to share! We spent New Years Eve at the zoo for the Noon Years Eve ball drop (picture below) and had a dance party with the girls in our living room before bed (:
Evie lost her second tooth on Christmas, I'm starting to think we are going to have to go on high-alert on holidays... We spent Thanksgiving afternoon in the ER as Eve had an apnea spell, she lost a tooth on Christmas, and had another apnea spell at the zoo yesterday (NYEve). We were thinking that these apnea spells were from seizures so last month we upped her meds. Since she has had another one since the med change, we will make an appointment with her pulmonologist as soon as we can. For those of you who don't know what apnea is, basically she stops breathing and we have stimulate her to get her going again. Think purple lips and pale skin. It's scary and not fun. Hopefully we can find the source of the problem, for now we are just watching her constantly.
Blessings to you all for a wonderful 2012! The pics of our house have been a work in progress as unpacking has taken me waaaayyyyy longer than I thought.... My unpacking goal was Christmas... Maybe I'll shoot for Christmas of this year!
Love you all, please let me know how I can pray for you in this new year (: