evie jayne: Spring!!!

Wednesday, May 4, 2011

Spring!!!

Love you friends! Had an exciting day, will tell you about it soon (:

2 comments:

AnonymousMay 6, 2011 at 9:43 AM
Her outfit in the first picture is so dang cute! So glad she's doing so wonderfully!
Raechel
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AmandaMay 6, 2011 at 9:58 PM
Looks like those are some very precious moments with your beautiful girls! I'm so glad everyone is doing so well.
Amanda
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Our Story

Hi New Friends!

This is the story of our Evie Jayne... as it unfolds. When I was 20 weeks pregnant with Evie, our second daughter, we were told that she had a lethal form of Osteogenesis Imperfecta. We finished the last 4 months of our pregnancy praying for a miracle, but also planning for Evie's passing. Evie was born on September 19, 2009, and the few minutes to hours we were supposed to have with her have turned into months.

Evie has a bone disease called Hypophosphatasia. She has been on a clinical trial since she was 2 months old, and it is going beautifully so far. She is truly a miracle, healed by our Heavenly Father, blessing our lives one day at a time.

So here is our blog to share her story, our joys, fears, prayer requests, and day to day life with our precious girls.

If you are new, here is a link to the Beginning of our Story.