how our second daughter is changing my life, adjusting my perspective, and enriching my faith.
"He performs wonders that cannot be fathomed, miracles that cannot be counted." - Job 5:9
Wednesday, September 30, 2009
One day at a time (:
Okay all you picture crazy people! I'm finally getting caught up on sleep (well kind of) and getting my priorities straight... like posting pictures of Evie and Lyla for your viewing pleasure (:
We are doing so good. I can't believe we are all home together, and going through the normal newborn routines of getting up in the middle of the night, taking naps, etc. It is such a welcome blessing. Both girls are doing good.
Evie still has a "skeletal dysplasia" but not a life threatening one, Praise God. We are seeing a pediatric orthopedist next Wednesday to take a look at Evie's bones and see what they think. We are hoping they can fix her clubfeet, and have some sort of idea how they think she will grow, and if there is any way we can be helpful in the meantime.
Other than that we are waiting for the geneticist to hear back from the Skeletal Dysplasia Registry about her x-rays, pictures, etc. to see if they have come up with a diagnosis. This is the same group of people who diagnosed her with OI, Type 2 from her ultrasounds. I pray that they can see God's healing hand when they compare ultrasound to x-ray! It makes me excited just to think about it (:
Many people have asked how they can pray, my biggest request is that the doctors can accurately diagnose her, or at least correctly diagnose any problems and if there is anything we can do.
Secondly, prayer that I can take one day at a time, Praise God for her life and all that he's already given us, and not worry about her future.
Okay, here are more pictures from the hospital and a couple from home. Bosley Creative did the hospital ones (why they are so amazing!) and we had newborn pictures done last night, so those should be coming soon!