evie jayne: thursday... irb day!

Thursday, November 5, 2009

thursday... irb day!

No news yet, still waiting... BUT Evie weighed 7lb 12 oz this morning!

Go Evie!!!

2 comments:

The Cummings FamilyNovember 5, 2009 at 4:56 PM
Its all that swimming we did yesterday :)
So glad she's gaining weight still. Praying for God's leading with the news we want to hear :)
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Melissa SwartleyNovember 5, 2009 at 10:38 PM
Glad to hear she is gaining weight! Yay Evie!!!
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Our Story

Hi New Friends!

This is the story of our Evie Jayne... as it unfolds. When I was 20 weeks pregnant with Evie, our second daughter, we were told that she had a lethal form of Osteogenesis Imperfecta. We finished the last 4 months of our pregnancy praying for a miracle, but also planning for Evie's passing. Evie was born on September 19, 2009, and the few minutes to hours we were supposed to have with her have turned into months.

Evie has a bone disease called Hypophosphatasia. She has been on a clinical trial since she was 2 months old, and it is going beautifully so far. She is truly a miracle, healed by our Heavenly Father, blessing our lives one day at a time.

So here is our blog to share her story, our joys, fears, prayer requests, and day to day life with our precious girls.

If you are new, here is a link to the Beginning of our Story.