our little family
Lyla being Lyla
I know I haven't blogged a lot in the past few weeks... I think it's because my emotions seem to be changing every day. On the one hand I am so thankful for John, thankful for Lyla, thankful for family, thankful for friends, thankful for our church family, and so thankful that I am experiencing the blessing of being lifted up in prayer each and every day, making this time more blessed than it is painful. On the other hand, I am sad thinking about Evie's diagnosis, sad about her short life expectancy, sad about missing her grow up, and sad about the emptiness that I can start to feel when I think about her leaving me.
I was reading a blog that my sister sent to me from a friend of a friend, and one of my favorite entries is "Lord Give me the Wisdom NOT to Waste all of This!" I don't want to waste a minute of this experience feeling sorry for myself and not experience the joy of Evie's life. I don't want to waste a minute of the time we have with her grieving, we will have time to do that when she's gone. I don't want to waste a minute of these next 6-8 weeks of time that I have to prepare my heart to experience God's faithfulness... like the other mom said on her blog "He chose us for this, and if I'm going to walk through a valley of this magnitude, then you best believe I will not waste this. I will not walk out unchanged, lacking more than when I entered in."
Our next appointment is next Tuesday, with a family meeting on Friday. I will update more when we have more information. Keep praying for healing friends, nothing is impossible with God.