Another week has gone by... where does time go??? It has certainly gone really fast the past 5 weeks having Evie and John home... unfortunately John goes back to work tomorrow. That will be a weird adjustment for us! When John was first home Lyla would say... "uh daddy, you going to work now?" it was pretty cute (: Now we will adjust back to daddy working! I remember thinking when we got married that life was finally going to settle down and I wouldn't have to adjust to change so much... ha! That's a funny thought looking back (:
Evie is doing good, we still go to the doctor every Monday and Thursday to give urine and get a weight check, and give blood on just Thursdays, but she is a trooper. They do the blood/urine to check her calcium levels. We get to go to the doc really early and I leave her in her car seat with a big cover over it so hopefully she doesn't get one of the billion cold or flu bugs going around. I have had a cold for the past week or so, but luckily (by the power of prayer!) neither of the girls have gotten it.
I got an email last Friday that hopefully we will have a better idea of what the IRB is thinking by tomorrow (Monday). We may also have a better idea of when her trial would start. I am praying for God's hand to work in the situation because I honestly feel like although I want everything to go as quickly as possible, only God knows what's best for Evie. Since there have been so few kids in the study, I am relying on Him for answers... which also takes a huge weight off of John and I's shoulders! This "learning to take one day at a time" thing has actually been a huge blessing in disguise, and really helped me to enjoy these past few weeks with much less worry. I have felt really blessed through all of our circumstances. Praise God for that! "Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me;" (Psalm 23: 4) takes on a whole new meaning when you actually experience it.
On a lighter note, we took Ly trick-or-treating twice this weekend in her tiger costume, and went to the pumpkin patch last Monday. It was 70 degrees, and absolutely beautiful! I will post some pics.
I will also let you know if we find out anything tomorrow about the medicine trial. THANKS for your continued prayers for Evie and our family! Love you!
Lyla and her friend Ben - I love this picture because I have no clue what either of them are thinking!
Eve in the tub - she loves it (:
Thanks for the update! I really wonder what those two were thinking!
ReplyDeletePatti
I love the bath picture - she is such a sweetie!! I am so glad to hear that you guys have had some awesome family time together this last week. Making memories with our kiddos is the best blessing of all. We will pray for continued health and protection from all these cough, cold and flu germs :( Love to you all!
ReplyDeleteSo glad to hear Evie is doing well! I too am learning to take one day at a time and it has been a blessing and challenge. We are still praying for Evie, that the trial would be God's vessel to finish healing her! God Bless!, Jenna
ReplyDeleteSweet pictures. Praying for you and agreeing with you against sickness. Praying for clear direction and wisdom and discernment regarding treatment.
ReplyDeleteAlso, I finally put a meal in the freezer this week when I was at church. Hope you're still checking and picking them up b/c there was another one in there, too.
I am so glad to hear that all is well and that you are all enjoying life day by day! The pictures are wonderful! Pumpkin patches are so much fun, looks like Lyla had a blast with her friend! We are still praying for you all and are excited to hear the news about Evie's treatment! She is such a tough cookie visiting the doctors twice a week! Sending you many hugs!
ReplyDeleteSo adorable! We have a gift for Evie, so when you are feeling up to it let me know!
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