We made it through the week, thanks for praying. Blood draw Tuesday went amazingly well, just one poke... Wednesday took 3 pokes, and Thursday only 2. But thankfully we got all the blood we needed.
Our PT Eval on Thursday went AWESOME! I forgot we hadn't seen the evaluator for three months, and Evie has improved so much. Three months ago Evie couldn't roll over, sit up, pick up food with her hands, or feed herself... ALL of which she can do now! Big, big improvements. Then we got to see one of our favorite docs on Friday, he was absolutely thrilled with Evie's progress. We are so lucky to have so many people who take a special interest in our special girl (: On our way home we swung by the pediatricians office for a weight check, and Eve weighed in at 15lb 6oz!!! She is obviously still off the normal growth curve, but her own growth curve is on the right path! (:
And I've been struggling with the oxygen. I tried really hard to ignore it and move on but for some reason since her test it seems like her concentrator buzzes a little louder, and her tanks are a little more annoying... I'm sure just because I was hoping to be done with them. My big struggle with oxygen is that she looks different with her O2 off. And I miss her little face being plastic free. So I decided when I get sad about it I'm just going to take her tube off for a few minutes and get a glimpse of what we have to look forward to. I will post a glimpse here for you to enjoy (:
Love you friends, thanks for praying and caring about us!