Thursday, July 28, 2011

nice legs!

Hi Friends!
People often ask me what the clinical trial is doing for Evie's bones. We had some x-rays done at Evie's orthopedic appointment yesterday so I thought I would show you for yourselves! I requested a disc of Evie's studies that have been done, I'm sure you will notice the difference:

x-ray of Evie's right leg, taken 9/20/2009 at 1 day old.

bone is undermineralized, short, bowed, and "disorganized" as her doc says.

x-ray of Evie's right leg, taken 7/27/2011 at 22 months of age.
bones are still undermineralized, yet there is lengthening, straightening, new bone forming, and organization into "normal"-ish, functioning leg bones!

can I get an AMEN!

Her doctor remarked that these two x-rays don't even look like they are from the same child! She has had such tremendous improvement in the past 22 months.

For those of you who are interested, in the top photo, the ends of Evie's bones are there, you just can't see them because of how undermineralized they are. They are basically cartilage that hasn't turned to bone yet. The lines in the more recent x-ray are stress points, or possibly micro-fractures from when she was still in utero or were caused at birth. When she gets more mobile these will be the possible breaking points, although her mom seems to think she will surprise everyone and stay in tact (: You can see the woman's hand in the more recent photo, this is what a more normally mineralized bone would look like, you can see Evie's are more gray, showing the undermineralization.

Love you friends! Thank you for your wonderful comments on Evie's walking video, she is practicing every day and gets so excited to show off her new skills (: She walked around a little when her friends were over today, it was so much fun to see her eye-level with kids her age.


  1. Wow! That is absolutely amazing! A true miracle indeed. Just looking at those images takes your breath away...go Evie. You are one inspirational little girl! :-)

  2. Absolutely incredible, our God is so good! God bless you for living by faith from the beginning to now and on. You're both an inspiration and I'm honored to have your footprints in my life. :)

  3. Sorry I don't comment on here often, but I read your posts. I just needed to give you a good AMEN! Sera just went back for her routine visit at St. Louis. So Evie's progress peaked my interest to comment. I am so excited for her progress in health and bone strength. Keep up the faith and the smiles. You are doing wonderful!

    By the way the verification code I needed to put in was "prances"

  4. Wow - what an amazing week you guys have had - one wonderful thing after another! It is incredible to see the progress Evie has made in her short life. We are so excited to see what else God has in store for her and her faithful, loving family.


  5. That is nothing short of a miracle from our amazing almighty Physician! God is so incredible! Your video clips of Evie are also super fun. She is such a joy to watch.

  6. The before and after is something else. This is wonderful you guys!