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I have been thinking about this post for a while, it seems to be relevant almost daily lately. This blog has been an important communication tool for me to meet other moms. Moms who are in the middle of a pregnancy with an unknown outcome... moms who have kids who are differently-abled... moms whose hearts ache as they watch their kids work so hard for the things that come naturally to 95% of everyone else... moms who cheer when their kid hits 10 pounds by 6 months (: ... moms who are up after midnight, sitting at the computer, reading other people's experiences, joys, and fears, and occasionally posting their own. I have learned so quickly that I am one of many.
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I recently reconnected with a girl that I went to high school with, as she is facing a difficult pregnancy. She is in a nearly identical situation as I was... halfway through her pregnancy with very few clear answers to her questions, and a heart full of fear. The unknown is scary. I know they can do it, there is no doubt in my mind. I didn't think I could do it, and I can't express in words how glad I am that I did. I am so thankful that Ashley and I have each other to talk to about our experiences and to lean on each other for support.
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I also connected with a mother on facebook, whose daughter is the first child to start the clinical trial that Evie is on (keep in mind there are only around 10 total)... how AMAZING is that! I have so many questions for her, I hope she doesn't regret "friending" me! There are pictures of her daughter Amy on facebook, who has infantile hypophosphatasia like Evie. She is absolutely beautiful, smiling, sitting up, holding her own head, and get this... standing... and taking STEPS. I could cry all night thinking about Evie walking. Even though it may not happen, the possibility of it is just flat out wonderful. Thank you for giving me hope sweet Amy. And thank you Amy's mom, for offering to call me (FROM IRELAND!) so we can chat. I hope I can show the same loving gesture to others (:
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It is very clear that God gave us Evie to show me love with no limits, to adjust my perspective, and to understand His love for us. This is what life is all about. Pure, unselfish, life giving love. A kind of love I had never felt, and JOY with each milestone. Thank you for sharing this journey with me, and for praying for our family as we continue on. It is an honor to share with you, and to pray with and for you. And a special thanks to the other moms who share their stories, and have opened their hearts to me. Writing it out isn't always easy, but doing life together has blessed me immeasurably.
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Love you!!! (:
Evie and I blogging... She thinks I'm very interesting!
You've been one of those "saviour mums" to me - since you've been there done that and I'm still on the pregnancy journey. I'm glad that you've had mums helping you too. Whenever a mum is helpful to me, I think "I hope they had help from someone else" - and I also think "I hope that I can be a sounding board for someone else in the future..."
ReplyDeleteThe internet is such a great way to connect with other parents in similar situations to yourself. I'm so thankful for it. Must have been so isolating back a 20 years ago for a mother going through something like this...
I think you're interesting too ;)
ReplyDeleteLove to hear your update! Thanks for letting me pray for you and your great family! Thanks for praying for me and mine!
Hey Lindsey- we were in Mops together last year.
ReplyDeleteJust wanted to let you know that I think you are amazing. I'm grateful to be able to read about your journey and see God's plan at work.
Praying for you and your beautiful family.
LIZ
Every time I pull up my Google Reader I can't wait to see if there is a 1 or a 2 next to your blog cuz it means you've posted something new. We are always thinking about you and always praying for you guys.
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