evie jayne: PHOTOS!!!

Wednesday, February 9, 2011

PHOTOS!!!

the computer's strike against uploading our photos has ended!!! Here are a few from the past few months:

Lyla's first gymnastics meet last weekend (:

Lyla's number one fan!

Papa Steveo and Evie at church

Nate, Ben, and Lyla at Sesame Street Live

mommy love

Grandma Dellie, Nana, and Evie at a wedding

Lyla and daddy kicking up their heels

and my children's favorite... bath time (:

3 comments:

AngelaFebruary 10, 2011 at 8:20 AM
Cute Pics!! :]
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BeccaFebruary 10, 2011 at 7:07 PM
LOL, I'm so glad your computer's strike has ended! We'll be praying for Evie's good health and an awesome outcome for her surgery. Thanks for your words of wisdom on planning...I needed those!
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AnonymousJanuary 29, 2013 at 7:58 PM
Beautiful and perfect baby
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Our Story

Hi New Friends!

This is the story of our Evie Jayne... as it unfolds. When I was 20 weeks pregnant with Evie, our second daughter, we were told that she had a lethal form of Osteogenesis Imperfecta. We finished the last 4 months of our pregnancy praying for a miracle, but also planning for Evie's passing. Evie was born on September 19, 2009, and the few minutes to hours we were supposed to have with her have turned into months.

Evie has a bone disease called Hypophosphatasia. She has been on a clinical trial since she was 2 months old, and it is going beautifully so far. She is truly a miracle, healed by our Heavenly Father, blessing our lives one day at a time.

So here is our blog to share her story, our joys, fears, prayer requests, and day to day life with our precious girls.

If you are new, here is a link to the Beginning of our Story.