Hi Friends and Fam,
My google calendar just "reminded me" that it is now officially the start of week 5 of Evie's treatment. Hallelujah!
Week 5 isn't just any week, it is the first week on Evie's treatment schedule that is non-existant, meaning that we still go in for her shots three times a week... but no blood draws, no urine samples, no physicals, nothing! We have a sheet of paper with little "x"s all over it indicating what tests are to be run, and there is nothing on week 5. Woo hoo!!!
Now we are looking at "landmark" weeks. The big weeks being Week 8, Week 12, Week 16, and Week 24. These first 4 weeks were intense monitoring and baseline information, which is why we had so much going on.
THANK YOU for praying for us last week. I haven't gotten a call yet about her EEG, but her skeletal survey went fine, no big improvements, but also no demineralization. That is good news. Treatment went fine Wednesday, physical exam went well Thursday, and treatment was also good Friday. I am a little dissapointed to say that Evie hasn't gained any weight, but she has grown longer, so that is good. She is still on oxygen, and has been eating and sleeping much better since that started. I can definitely tell she has grown, so hopefully she will start gaining weight also.
I celebrated the end of the week with an Apple Fritter and enormous Diet Coke on the way home... it was heavenly (: Oh, the little things.
I am going to post pictures on my next post - just realized how far behind I am on that!
Going to bed for now - thanks for checking in!
Love you friends, thanks again for your prayers, comments, and emails - they mean the world to me.