Hi Friends!
Evie had her first injection yesterday morning... and it went great!!! No side effects, no allergic reactions, not a thing. Go Evie Jayne! And Lyla was relatively good most of the time for being in a small beige PICU room with no windows to the outside world... Go Lyla! John and I took turns sleeping at the hospital hotel, so one of us could stay with Eve, and Lyla could get some sleep, it was wonderful.
We start injections in the LIED transplant center tomorrow, and continue these on Monday, Wednesday, and Friday for the next 6 months. We are going to try to do them in the late afternoon so John can take Lyla home when he gets off of work at 3:30. Hopefully it will work our well, or we will re-evaluate.
THANK YOU for your prayers, I knew I was being prayed for when I woke up this morning curled up in a plastic recliner with my head on a wooden armrest, and was in a great mood! For someone who doesn't function well on little sleep, that is a direct result of the power of prayer. I have the best friends and family.
It's family time! Thanks for checking in, and I'll be sure to update soon (:
Love you all (:
AND THANK YOU Kristi and Dr. Lutz who have worked so hard to make this treatment work for us. You are amazing and wonderful.
Wow, SO great to hear, Linds! We will be home for quite awhile between Christmas and New Year's - can we please stop in and see your growing fam??? :) I will be thinking of you and praying for perseverance... 3x/week for 6 months will take lots of energy. We were just talking at small group about being a servant like Jesus in Phil 2, where it says "he emptied himself" - this is definitely what that will require. Praying for you already that God will give you much joy in emptying yourself for your precious Evie and family. Love to you!!
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