I have been thinking that very thought several times today, but Evie's doing so well I would rather celebrate and sleep later! (I'll regret that tomorrow...) (:
WELL thank you for praying because I spent most of yesterday crying. They turned Evie's vent settings down twice, and her breathing went down right with it... meaning she wasn't breathing on her own. I was so immensely dissapointed. BUT I slept in the hotel last night and when I got down to her room this morning, they had weaned her almost all of the way down!
It was like God was standing right in front of me saying "See lady, give me control and I'll take care of it!" How is that so easy to forget??? I feel like as Evie's mother I am her main advocate, but I need to take a step back more frequently and place this child in the Lord's hands. I can't heal her, but HE CAN. I can sit in her room all day every day for weeks, but he is going to heal her, on his clock.
That being said, it is the plan to extubate her tomorrow morning! Not sure what time they do rounds, but it's my turn to sleep in her room, so I will definitely be here. THANK YOU for loving us, I can't tell you how many emails I get that start with "you don't know me" and people express their love for Evie and that they are praying diligently for her. It blesses me beyond measure.
"Now Glory be to God! By his mighty power at work within us, he is able to accomplish infinitely more than we would ever dare to ask or hope" And believe me friends.... I ask for an awful lot!!!
Love you (: