evie jayne: an all over good day...

Friday, February 26, 2010

an all over good day...

Hello Friends!

Evie had another EEG this morning, and she had no seizures!!! She just got her injection and we are going home at 3pm, horray!

The clowns from the circus came to the hospital yesterday, and Lyla had to teach the clown what happens when you push her nose:

his wasn't working...

Lyla showed him what to do

it was so funny!

3 comments:

The Cummings FamilyFebruary 26, 2010 at 3:38 PM
I love her smile and laugh! So happy that you're headed home!
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StinaOTRMarch 1, 2010 at 8:27 AM
Adorable!
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AngelaMarch 2, 2010 at 4:53 PM
These pictures are fantastic! I'm so glad you guys are HOME. :]
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Our Story

Hi New Friends!

This is the story of our Evie Jayne... as it unfolds. When I was 20 weeks pregnant with Evie, our second daughter, we were told that she had a lethal form of Osteogenesis Imperfecta. We finished the last 4 months of our pregnancy praying for a miracle, but also planning for Evie's passing. Evie was born on September 19, 2009, and the few minutes to hours we were supposed to have with her have turned into months.

Evie has a bone disease called Hypophosphatasia. She has been on a clinical trial since she was 2 months old, and it is going beautifully so far. She is truly a miracle, healed by our Heavenly Father, blessing our lives one day at a time.

So here is our blog to share her story, our joys, fears, prayer requests, and day to day life with our precious girls.

If you are new, here is a link to the Beginning of our Story.