We have had an awesome week... NO doctor's appointments, no colds, nice weather, and lots of family time.
A few accomplishments to note:
1. I realized that tomorrow is Evie's last injection of week 22. WEEK 22! that means we only have two more weeks to go of Evie's 6 month drug trial, and then we are officially on the two year extension study. I thought these 6 months were going to take forever, I can't believe they are almost over.
2. Evie is finally REACHING for things! We have been trying to get her to grab toys for a few weeks, and she finally got it. So exciting to see her fine motor skills develop! (Thanks Chris and Susan, her OT and PT!) I am glad I have been growing out my hair, it's one of her favorite things to reach for (:
3. We have been turning Evie's oxygen down below 1/2Liter at night, and she stays in the upper 90s on her O2 Sat monitor. Ohhhhhhhhh my heart aches for the day when she will be off of oxygen and I can stare at her unobstructed little face in all it's beauty. Just to know that she is moving in the right direction makes me cry. I'll just say it, I miss her face. I miss it, I miss it, I miss it like crazy. When I change her stickers that hold her tube on, sometimes I hold it off for a few seconds, and my heart aches to take it off for good. She looks different, and I miss it. We are going to get there.
4. Lastly, and most importantly, Evie is saying mamama and dadada. I won't go into detail as to which she said first (: but it is awesome. She is doing a ton of vocalizing, and it is so wonderful to hear her voice! A sound we didn't know we would get to hear (:
THANK YOU for praying for us, we have been so blessed with good health this past week, no one has even a hint of a sniffle. Keep praying that we can stay healthy through Evie's surgery.
Love you friends! You're the best!