Hi Friends (:
Thanks for praying for Evie's fever... she was lethargic today, but seems to be a little more with it tonight. Hopefully she'll be done and over with it by tomorrow.
TOMORROW... is the start of WEEK 24 of Evie's clinical trial! Her clinical trial is the 6 months of injections we have been giving her, and all of the tests and appointments that go with it. Week 24 is the official end of the first 6 months of the trial... then we sign on to a 2 year extention study.
So we have a test of "infant development", blood draws, urine samples, kidney ultrasound, full set of skeletal x-rays, vitals, and physical exam to do this week for the trial, as well as a routine neurology appointment. Here we go again! My 2 weeks of slacking off are officially over (:
Today we had Lyla and Papa Steve's "family birthday party" at my parents house... it was so much fun. She will officially be 3 on Wednesday. She and Papa Steve are going to go ride the ferris wheel at Sheels... it will be the highlight of her week (:
Thank you for praying for us, I'm going to end with some of my favorite verses that encourage me with busy Evie weeks!
Love you friends!
Have you never heard?
Have you never understood?
The Lord is the everlasting God,
the Creator of all the earth
He never grows weak or weary.
No one can measure the depths of his understanding.
He gives power to the weak and strength to the powerless.
Even youths will become weak and tired,
and young men will fall in exhausting.
But those who trust in the Lord will find new strength.
They will soar high on wings like eagles.
They will run and not grow weary.
They will walk and not faint.
Lamentations 3:22 - 23.
Because of the Lord's great love
we are not consumed, for His compassions never fail.
They are new every morning;
great is Your faithfulness.