I got a call on Friday, that July 16th isn't going to work for Dr. Puccioni, Evie's neurosurgeon, to do her surgery. They would like to move it to August 6th. I called his PA because I am concerned about the pressure in Evie's head building, so we are going to have a follow up CT scan done tomorrow to make sure she's okay. She hasn't done one since April 27th, so it seems only appropriate that we check to see how things are progressing. She also said that Dr. Puccioni will be back in the office on Tuesday, and they will try to get Evie scheduled sooner.
I am pretty anxious about the whole thing... August 6th seems so far away, and Evie's soft spot sure looks large and pointed. When we met with Dr. Puccioni the first time we left with the impression that Evie's surgery would be scheduled for 2 to 4 weeks after the craniofacial clinic... which was nearly 4 weeks ago.
Will you pray with me that 1. Evie's brain pressure hasn't increased over the past few months or done any damage, 2. That we can get her surgery scheduled and confirmed, and 3. That John can get his schedule rearranged around the new date? (he already cleared july 16-21!)
Thanks friends (: Love you.