evie jayne: Tenative Date!

Friday, June 11, 2010

Tenative Date!

Hi Friends!

Evie's tenative surgery date is July 16th (: I find out for sure on Monday. I am actually relieved that we have 5 weeks to prepare, get John's work schedule switched around a little, pray, relax, play, pray, relax, and pray some more.

Good night friends (: Love you.

1 comment:

YvonneJune 12, 2010 at 5:39 AM
Must be a relief to know that things are on the move to help wee Evie. Good to have the preparation time.

Love to you all
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Our Story

Hi New Friends!

This is the story of our Evie Jayne... as it unfolds. When I was 20 weeks pregnant with Evie, our second daughter, we were told that she had a lethal form of Osteogenesis Imperfecta. We finished the last 4 months of our pregnancy praying for a miracle, but also planning for Evie's passing. Evie was born on September 19, 2009, and the few minutes to hours we were supposed to have with her have turned into months.

Evie has a bone disease called Hypophosphatasia. She has been on a clinical trial since she was 2 months old, and it is going beautifully so far. She is truly a miracle, healed by our Heavenly Father, blessing our lives one day at a time.

So here is our blog to share her story, our joys, fears, prayer requests, and day to day life with our precious girls.

If you are new, here is a link to the Beginning of our Story.