Hi Friends (:
We met with Evie's pulmonologist (heart and lung doc) this afternoon. She has had a cold for about 10 days so I was pretty nervous when he warmed up his stethoscope, but he said her lungs sound better than ever! I am thrilled, especially since her lungs have been an ongoing problem since birth. We are going to have an echocardiogram done as soon as possible to see if her heart is working normal or a little overtime, and when she is well we can start weaning her oxygen as much as she tolerates! WOW! I don't really have a "goal" for when she will be off of oxygen since my original goal was April... so we're just going to see how it goes. How free-ing it will be to leave the house without a tank on my back!
Long day, going to try to get to bed early. Love you friends, thanks for checking in!