i'm so tired that's the most creative title i can come up with. oh well!
Evie's appointment with the Orthopaedist (bone doctor)went great this morning. In a nutshell, we aren't going to try to fix anything bone wise until it becomes necessary for Evie's functioning... such as standing, walking, etc. For now, we are going to let her progress naturally, and keep an eye on things. Her bones are progressing well, so we are doing the right thing treatment wise. Horray for that! We will look at straightening out her feet next year.
He also mentioned that he doesn't have much experience with kids who have hypophosphatasia because most of them didn't survive in the past. Go Evie! Her positive progress continues to amaze everyone!!! He said he looks at her case as a new "challenge." It was a very positive experience.
So THANKS for praying, we see the pulmonologist tomorrow, hopefully Evie's cold and lungs will clear up soon but I'm thinking we'll probably have to have a chest x-ray. We'll see.
Love you friends!