Wednesday, August 18, 2010

half-way done day...

Is this week over YET!

That's not the best way to feel on Wednesday evening! It's not as bad as it sounds... we had to do Evie's overnight urine last night, which is always an adventure. Not a fun discovery adventure... more like a dark frustrating adventure... Long story short, barely any of Evie's urine got in the bag, I checked every 2-3 hours overnight only to find that the pee came out of the collector bag, soaked through the cotton balls, and went in her diaper... that doesn't give it back. So I tried a little more this morning, and after she pooped in the first bag, and pulled the second urine-filled bag off of herself onto my bed... we called it good.

We had to move blood draws to Mon, Wed, Thurs because they couldn't draw enough blood on Monday, but today was a little better. So we go in tomorrow at noon for her last blood draw of the week, and have an EEG at 1. Evie has been doing some rhythmic head nodding and arching of her back, so we are suspecting seizures but are going to do an EEG before adjusting her meds.

And unfortunately we all have colds. I thought the girls were getting over them yesterday, but I woke up this morning with a sore throat. We had to take Evie to see the pediatrician this afternoon, because hers is starting to settle in her chest, so we are going to get more aggressive with breathing treatments.

So I am aiming to get a good nights sleep tonight... tomorrow brings meds, breathing treatment, bloodwork, EEG, breathing treatment, Lyla's first day of gymnastics, and one last breathing treatment. Add to that eating, driving, and washing all of the things Eve peed on last night, and we have a pretty full day!

Love you friends (: Thanks for praying for us and loving us!

Here are some pics from last week

I always ask Lyla "will you hug me forever? even when your 13?" and she says yes... and the other day she got out of the car and said "Mom, will you hug me forever?" it was awesome!

check out that beautiful head! it is healing more and more every day.

her scar is healing beautifully too (:

Psalm 90

14 Satisfy us in the morning with your unfailing love,
that we may sing for joy and be glad all our days.



  1. Guess a full day leaves no time for boredom!!!!! As long as you have time to squeeze in hugs eh?!
    Those collection bags can have a mind of their own eh??

    Hope you all recover from colds quickly

  2. Isn't it the best when your little ones do something or say something that just makes your heart over flow? You for sure will have Lyla hugs forever!

    Evies head looks AWESOME....she will have a full head of hair before you know it!

    Hope you are feeling better soon.

  3. feel better:). Thea is 12 and I still get hugs, but it is her smile that warms my heart now days.

  4. I love the pictures!!! I love your story too. I think I love your story so much because I know it's going to give everyone that reads it hope for the future and a reason to pray even more. It's so cool.