a beautiful head...

Hi Friends! We're still here!... recovering from Evie's illness, and trying to enjoy the outdoors in spite of the HEAT! I finally uploaded all of my cell phone pictures onto the computer... so here is my best attempt to give you a progression of Evie's beautiful head (:

January 2010... no concerns.

February 2010... beginning of the bulging soft spot
March 2010... soft spot continues to bulge, head starts growing more upward, less round...

still March... (just a cute pic!)

April 2010... you can see how her forehead is growing backward instead of everything growing equally around.

May 2010... bulging soft spot very obvious. Much more concern about pressure in the brain...

July 13, 2010... three days before surgery. I took a picture with her hair wet so you can really see her head...

side view...

July 16, 2010... the morning of surgery

a few hours later! our first post-op photos. you can already tell the difference in her eyes, they brought her forehead forward a full centimeter...

her fresh scar a few days after surgery...

July 23... one week after surgery! you can see the difference in the shape of her head, although it is still very swollen...

July 29th... swelling continues to go down
August 1st, scar is healing, hair is growing, and she's holding her own bottle! you go Eve!

I haven't taken any photos in the past few days, but will do soon (: Just wanted to get caught up when I had a minute! Health wise, Evie had her two post-op appointments last Friday, with the plastic surgeon and neurosurgeon and they both thought she looked fantastic. Today, she had her full set of skeletal x-rays for her 3 month clinical trial check, and I thought they looked amazing compared to previous ones I have seen.

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Most importantly, she has been vomit-free for 3 whole days... and has gained all of her weight back! She was over 12lbs before surgery, got down to 11lb5oz last week, and was back up to 12lb 3oz today at the pediatrician! I am blown away by her ability to bounce back, and humbled by the results of prayer in her life.

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I talked to Dr. Lutz today about her prognosis... specifically are we out of the "life threatening" range of complications. If you remember, there is a 50% morbity rate for children with infantile hypophosphatasia and seizures by 18 months of age. He said that Enobia (the clinical trial drug company) was very leary of the severity of her condition with her seizures when the trial started last year, but he thinks that with her continual improvement and growth, we are definitely out of the "life threatening" woods! Big PRAISE GOD!

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LOVE YOU friends, thanks for praying for, and loving us. You rock!