I am happy to say, I really don't have much to blog about! Evie is doing good... she had some vomiting today, but the doc thinks it's just from an antibiotic, and since we stopped giving it to her she has kept her pedialyte down.
I have been dealing with an interesting dilemma lately... Evie is not really into hats. It's 90 degrees... but Evie has a scar on her head from ear to ear. You know, I'm not really sure what the proper societal thing to do is. On one hand I feel like, Evie doesn't want to wear hats, deal with it everyone! On the other hand, we get enough stares. It hurts me more than it hurts her, but it hurts.
Walking out of Applebees on Tuesday, I heard a lady say to her co-diner "Look, that baby has cancer!" I get it. She's on oxygen, her eyes are a little bruised, she's wearing a cap in the middle of the summer. But it sunk in. Deep. I read a great blog post a few days before called "Please spare us the pity stare" This being my favorite part:
Believe it or not, I do not actually consider either of us worthy of pity. My son may not be your idea of "typical" but he's still an awesome kid. I don't want him to grow up feeling pathetic. He needs confidence, and lots of it. He deserves respect and dignity, hold the pity. Same goes for me. I am perfectly content with this child of mine. He's beyond adorable, he's bright, he's got a huge personality, he makes me laugh, he gives me tremendous pride in his accomplishments—you know, just like any other kid. I'm not saying my life is easy. I'm not saying that I don't cry over what happened to Max. But we have ourselves a good life. A life not to be pitied.
I am so thankful for the blogs of other women who have kids who are differently abled. Women who are years farther ahead in this journey than we are. I want to raise Evie to be comfortable and confident in her own skin. I have thought about looking for books about how to raise kids with special needs, any recommendations?
Thanks for listening friends (: Love you!
PS - Now that Evie's swelling is down I'm working on a before & after post... she looks AMAZING!!